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About Chronic Illness

  1. Introduction
  2. About Dr. Steiner's Audio CD: The Rollercoaster of Chronic Illness
  3. Articles:
    1. Toolkit for Families Living with Chronic Medical Illness
    2. Healing Power of Groups
    3. Why Nickname your Illness?
  4. Books:
    1. Believing in Ourselves
    2. My New Book
  5. Contest Page

NEW CONTEST!

In her forthcoming book, Dr. Steiner will introduce practical tools to help people living with chronic illness and pain find ways to create (or re-create) and sustain pleasure, satisfaction, and meaning in life. One tool is to nickname your illness or limitation. You and those who care about you are invited to participate by:


WHY NICKNAME YOUR ILLNESS

Learning to live with chronic illness or limitation is not easy. (Some would even say it isn't for wimps!) Having chronic pain or illness is not something we ask to have happen in our lives. Yet, somehow we need to avoid either of these extremes: seeing ourselves as the illness OR ignoring it completely. This is a challenging process that usually takes time and changes in lifestyle. One way to make room for your illness without letting it take over, is to give it a nickname. Giving your limitations a nickname can also be a helpful way to talk with others about having a chronic illness.

For example, Arthur, of Arthur-itis, is my Uninvited Life Partner. If I tell friends that Arthur has moved into my knee today, we can figure out how we can spend time together without making Arthur grumpier. On good days I can happily report that Arthur won't object to going for a walk. I use a person's name for my illness. Some people are more comfortable choosing a name that describes the illness or limitation, rather than using a person's name.

What nickname do you have for your uninvited life companion? Some people find it hard to get help because their illness is invisible or hidden. Have you found a way to talk about your illness to the important people in your life? Consider writing down a list of possible nicknames, maybe discuss this idea with a trusted friend. Once you find a nickname that seems right, test it out with a few people you are comfortable with. You'll be surprised at the conversations it leads to!

TIPS

When thinking about nicknaming your illness keep these three things in mind:


NICKNAME YOUR ILLNESS CONTEST

Please share the nickname you use for the medical problem, syndrome, or illness that is part of your life:


NICKNAME YOUR ILLNESS CONTEST

Please share the nickname you use for the medical problem, syndrome, or illness that is part of your life:

Nicknames for your uninvited companion





Dealing with the "How ARE YOU?" Question. Have you ever been irritated by someone asking how you are? Or not wanted to be bothered with giving a Daily Health Report? Finding a way to answer without hostility can be a challenge. Please share any one-liners that have worked for you.

Favorite One-Liners you use when asked "How are you?" (or if you are asked about your care-partner, wife, husband, child, etc.)









Winning entries for each category will be listed on this website, used in Dr. Steiner's forthcoming self-help book.

Permission to be Quoted. I give Dr. Steiner permission to use my name, or pseudonym, and my nickname or one-line reply in her written publications and on her website, www.DrSteiner.com.



(optional)

Note: Winners will be notified by email and receive a permission-to-be-quoted form to sign.

This article is based on sections of her forthcoming self-help book.
Please do not use this material without the author's written consent.

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